Find strength in shared experience. This is a peer-to-peer network of Indian pulmonary hypertension patients offering each other emotional support, humour, and positive encouragement.
Don’t face Pulmonary Hypertension alone!
We’re a community of Indian PH warriors, here to support each other on this journey. Need a listening ear? Craving a laugh? Looking for tips and advice? This is your place!
Connect with fellow PH patients, share experiences, and find strength in numbers. We’ll tackle challenges together, navigate this rare illness, and lift each other up with positivity.
Join us and let’s breathe easier together!
Empowerment Through Community
Pulmonary hypertension can be an isolating journey due to its rarity, but you don’t have to face it alone. Pulmonary Hypertension India (PHI)’s support group, the Indian PHight Club, connects you with others who intimately understand the daily challenges of living with this condition. Sharing experiences and emotions with a community that truly gets it can combat feelings of isolation and loneliness, fostering a more positive outlook. The Indian PHight Club provides a safe haven to openly share frustrations, fears, and successes with people who genuinely understand what you’re going through. This emotional support network can be invaluable in navigating the ups and downs of your PH journey.
Our patients come from diverse parts of India and all walks of life. We support each other in our own culturally and geographically unique ways. For example, sharing information on where to find medication during travel or vacation, or recommending good places to stay near a hospital. We also engage in open discussions about our shared experiences, creating a sense of community and understanding.
But our community offers more than just connection; it’s a wellspring of information. We often feature discussions, presentations, or guest speakers who share valuable insights on PH management, treatment options, and coping strategies. Learning from those who are successfully managing PH can be incredibly empowering and inspiring.
We empower patients with practical tips and a strong sense of community to help them manage their condition more effectively and improve their overall quality of life.
Come join us today! Just click here to get started. Don’t forget, registration is required!
Joining our support group is super easy – it only takes a few simple steps:
1. Scan the QR code on the side or click this link.
2. Fill up the form with your information.
3. One of our patient leaders will reach out to you for verification.
4. Share with the patient leader the necessary info and a nice pic of yourself for your introduction to the community.
5. You’ll be added to the group the following week.
All you need is WhatsApp on your smartphone. No need to worry about English proficiency! We are multi-lingual.
We’re here to help and support you every step of the way. Looking forward to having you join us!
Support Group Testimonials
Joining the PHI support group has been such a positive experience for me! I’ve learned so much about what foods are best for managing PH symptoms and have even made some great new friends who understand what I’m going through. It’s been eye-opening to hear how others cope with this challenging disease. I’ve also taken the opportunity to broaden my knowledge about my condition.
– Mahalakshmi Iyengar, 33
I can’t even begin to express how much the PHI support group has helped me! Before joining, I didn’t know much about this rare disease, but now I realize that there are so many people out there going through the same thing. Hearing about other people’s experiences puts my mind at ease.
– Mahesh Lalwani, 25
Doctors can be limited on time and may not always offer a complete perspective. Their main focus is often on treating immediate symptoms. However, being part of a support group has opened up more options for me and helped me understand the different effects of my condition. It’s great to have a community that can provide insight into any new symptoms I may experience in the future.
– Sonal Karve, 29